I had two okay shunt days so far this week. Today I feel dizzy, I suspect because we’re getting a foot foot of snow tomorrow. Putting my head down will alleviate some of the discomfort.
I finished a book yesterday called The Danger Within Us: America’s Untested, Unregulated Medical Device Industry by Jeanne Lenzer. The book was recommended by someone on Twitter and I was able to get a copy from my library. The Danger Within Us discusses the history of the American Medical System, problems which arise and are still continuing for patients and doctors. My jaw was on the floor several times while reading this book. Just in the introduction alone, I was stunned at what I was reading.
I couldn’t believe the FDA ( food and Drug Administration ) can approve medical devices ( cerebral shunts, stents and others ) without verifying whether these devices are actually safe to use on people or not. As long as they work ( and $$ ) then that’s what matters. I knew this issue existed in the use of drugs and pharmaceutical companies. I’ve been given medications after my brain injuries in 2014 which were supposed to be for pain management. Several times some of the drugs I was given either gave me extremely depressed/suicidal or I had psychotic episodes. I also felt my shunt was reacting to the medications I was given. The Danger Within Us also talked about medical devices which can be controlled wireless. What’s stopping someone from hacking into a pacemaker from another room and disabling the device? Things I didn’t think about until reading this book.
It’s only inspired me to write to my local legislative officials perhaps policies can be changed regarding medical devices and the care we receive upon having them inserted into our bodies.