Tag Archives: stroke

6 on 6

Today, March 6, 2020 marks 6 years since I survived multiple brain injuries during a shunt revision on 3/6/14.  Today is my golden brain birthday – six years on the 6th day of March.  I had two shunt revision surgeries during 2014.  The second was when the rest of my shunt was finally repaired in May 2014.

After my brain injuries on 3/6/14.

Overall, I had a great brain birthday today. I had no chronic or shunt pain issues. The whole day and into the evening.

During the day today, I tried a Virtual Reality simulation at my local mall. I was on a swing somewhere in Asia. Very cool experience there were times when I got a little dizzy going up high into the air.

During the holidays in December 2019. 
6 Years surviving multiple brain injuries.

I also enjoyed some arcade games today. Finally, I made some new characters at the lego store and then returned home and enjoyed my cupcake. I didn’t use a number candle this year, just because of last year’s experience.

Blowing out my candle today made me hope to have more pain free days and of course, no more shunt revisions….

Grumpy with a side of tea

I’ve had shunt and forehead pain with a side nausea and right eye pain consistently for over a week now. The eye pain ( strabismus surgery eye ) happens at the same time as shunt and distal catheter pain. My shunt is probably adjusting itself or just being an unruly medical device or both. I’ve also had scalp sensitivity where my shunt is and am more aware of this when I comb my hair.

Either way, it’s made me grumpy and I’ve been staying indoors when I don’t have anywhere I need to be. Pain reliever’s haven’t been working.

I don’t think the settings are have changed. Although, I wouldn’t have anyway to check this because…

1. My neurologist doesn’t know how to check my shunt’s settings
2. The last neurosurgeon I saw in 2018, didn’t know how to do this either. Because…

Apparently the shunt I was given isn’t used anywhere nearby.

And this is just so helpful…

I can’t go back to my ex neurosurgeon (who placed this shunt) because I fired him and he got animated into one of my films…

All I can do is wait for this to go away.

And there’s always a little time for a tea…