I’ve been having pain from the catheter in my stomach which isn’t normal when I’m suppose not be feeling anything at all. I’m also burping too much and have a metallic taste in my mouth.  I had an adjustment made on my shunt valve yesterday while at the doctor’s office. It used to be on a level 8. Now it’s at a  level 10.  In a few days ( by Friday ) I should be feeling my symptoms alleviated. Next week I have the joy of getting another CT scan of my abdomen to see what could be going on there.

I finished therapy yesterday and was given the option of paying to get accommodations for my car so I can drive better. They gave me a driving simulation to see how well my reaction time is. It would be easier if I didn’t have a patch covering my eye. Sometime in July (I hope) I’ll see another neuro-ophthalmologist about my right eye and I might get glasses to wear while I wait for it to heal. I’ve been excising my eye in the meantime to help it remember it’s not the only eye. Something good has to come out of all of this. I’ve been sharing my story with radio stations, news, talk shows so we’ll see if anyone responds…U survived the last 5 years with my shunt in the wrong way. I don’t want the same thing to happen to anyone else.